they all are schooling in 2014!!!

and mommy hope that she can shed some kilos....

5-words sentence

"mommy, amir nak nasi goreng..."

bagi parents lain, nothing to be excited about bila anak anda boleh buat ayat macam tu.
tapi bagi saya yg ada autistic boy with speech delay, it's a major success
memang amir boleh cakap, boleh repeat apa yg orang sebut, boleh baca apa yang ditulis tapi untuk buat satu ayat yang bermakna memang kena train habis-habisan. kena ajar beriya. kena pergi theraphy selalu-selalu.

syukur pada Mu, ya Allah

Sensory Overload - A Mother's Open Letter...

 copied from FB :

Single Mothers who have Children with Autism · 

 I know you've seen me. I'm that mother you pass whose trying to console her screaming child. You think the kid looks too old to behave this way; kicking, thrusting, pushing, smacking and grabbing, all while letting out shrill cries and screams. The mother seems unrealistically calm but her face shows signs of fatigue. You stare for a moment before thinking to yourself, "Dear god, how could she let that brat behave that way?" I know how you're feeling at that moment… I used to be like you; I resigned myself to judgment until I was on the other end of the glare.

It seems to me that, by nature, humans are extremely judgmental creatures, especially on sensitive subjects such as parenting. We rarely take a moment to realize that there are circumstances in which we just don't understand because we haven't "been there." I'm guilty of it and I'm sure you are, too.

My son has something called Pervasive Developmental Disorder - Not Otherwise Specified, which is a high functioning form of Autism. With so many children diagnosed with Autism every year, I'm astounded by how ignorant people are towards it. Before Ben was diagnosed, my only knowledge of Autism was from some of the children that I went to school with and from entertainment. I never realized how broad the spectrum of Autism was.

You see, Ben is a very intelligent, imaginative, expressive, sensitive and creative little guy. To me, he is pure sunshine and one of the few things that can immediately pull me out of any funk. He has a brilliant smile that lights up a room, curious brown eyes with endless depths of thoughts and perceptions and a gentle, sweet, happy disposition that can't be matched. He can charm anyone who comes in contact with him and has a giggle that melts even the most frozen of hearts.

At first glance, Ben is a typical 3 year old boy. But my son has trouble with verbal and social skills. It wasn't until very recently that he started saying words that many parents take for granted by this age, like "Mommy," "Daddy," "eat" and simple expressions of wants and needs. Ben still prefers to play on the periphery of other children if not completely alone and it sometimes takes a bit to puncture through the bubble he puts around himself to be part of his world. Like many other children with Autism, Ben has heightened sensations. While most of us can focus on one particular thing, like a conversation with someone else, for Ben, his mind would be focusing on the conversation, the light in the room, the other sounds in the room, the smells, the texture of the clothes he's wearing, the other sights in the room; unable to filter one as a priority over the others. This becomes, literally, a painful experience for Ben as his brain is unable to filter with all the signals being thrust upon him all at once. I mean, could you possibly imagine what my son goes through on a day to day basis?

Going anywhere requires precise planning and delicate timing. Through experience, I have learned the best stores and the best times of day to take Ben. I know this isn't particularly uncommon for parents of small children, but it's a little more involved in that. Ben needs an established, structured routine in his life. This sense of absolute helps him feel as though he has more control over his life and assures him that everything is okay. The slightest breech in this routine could be catastrophic for him. I have learned that he has certain comfort mechanisms that may be able to help him center himself again. For Ben, this is often a soft textured fabric (e.g. a favorite plush, a soft blanket or the stuffing from the inside of a pillow) to rub his face on or by rubbing or gently squeezing his limbs.

But sometimes, these are simply not enough and his sensory perception becomes just too much for him to be able to calm himself and he goes into something called, "Sensory Overload." When this happens, Ben begins crying and screaming; kicking and thrusting. When this happens, I'm often kicked, pinched, smacked, have my glasses pulled off my face and thrown and feel helpless that I can't console my child. Ben doesn't know how to express to me what he's going through or how he's feeling and that mutual feeling of frustrated desperation is felt by both of us. When this happens, it is my job to remove Ben from the situation as much as possible, stay calm, loving, compassionate and understanding. I know that when Ben is having sensory overload, that he's in pain and I know that no matter how much he may do to me, I know he's in far more agony than I could ever be in. My priority at that moment isn't about my comfort, the other patrons of wherever we may be, but on the needs of my child.

If everyone would take just a split second to push aside their judgments and remember that we may not know everything, maybe this world would be a more compassionate place. The next
time you see me, or another parent like me, out in public, remember that it isn't because of bad parenting. That child that they're trying to comfort may be in actual pain and any parent who loves their child would do anything to take that pain away, despite what anyone else may think.

Nancy E Sheppard via http://voices.yahoo.com/sensory-overload-11521226.html?cat=5

 

activities during school holidays!!! yet more to come....

swimming at IIUM sport complex

 everyday, they must watch BRAVE, adik kata cerita 'kakak Merida'

 

adik's new hairdo!!!

 

Feeding the fish at kolam kat ofis mommy. Irfan kalau boleh tiap2 hari nak pergi

balik kampung....jumpa atuk nenek, cousins. pergi tengok goat, makan buah

 

amir baca buku!!

assalamualaikum....

alhamdulillah, masih diberi peluang oleh Illahi bernafas walaupun kebelakangan ni tak berapa sihat disebabkan batuk yang on-off since sebelum puasa. lagi teruk kadang2 sampai semput and need inhaler. nasib baik x kena nebs. semua tu rezeki dari Allah. syukur Alhamdulillah....

lama tak update pasal budak bertiga ni, tapi hari ni nak cerita pasal Amir Asyraaf dulu lah...

rasanya dia semakin aktif n 'nakal'. kalau dia nak sesuatu dia nak2 jugak walaupun dah banyak kali marah n sound dia.

sangat obses dgn TOY STORY 3. sampai dah hafal dialog. pastu asyik rewind n forward. mmg habis punah jahanam le dvd tu.

still nak poo dalam diaper gak tapi cakap "nak berak toilet"! *mommy tepuk dahi!*

but one thing yang mommy really proud, he can read the whole book depan kawan2. good job my hensem n clever boy!

dah banyak word yang keluar dari mulut dia. kalau nak mintak apa2 gesture (seperti ambil botol air) dan kata2 (nak mango!). sekarang ni buat approach, kalau tak cakap nak apa tak nak layan...paksa gak dia bercakap

kalau tangan dia tak occupied dgn something e.g handphone, tablet, his magnetic alphabet, books, etc, mesti dia nak masuk tangan dalam mulut. kalau dia geram or marah pun sama gak, mesti nk gigit tangan!!! alahai anak omak....

ok, enuff for this post...wassalam...

amir lepak dalam besen sambil main handphone

 

update - 30th april 2012

assalamualaikum w.r.t

lama tak buat posting pasal kanak2 riang saya...

amir asyraaf

bulan july ni amir will be 6. alahai how times fly....jap je amir dah nak masuk std 1.
amir still sekolah kt nasom. fine motor skill still weak but dah byk improvement. kesian amir, mommy tak sempat nak buat aktiviti byk2 ngan amir. balik sekolah selalunya amir akan tido awal, n mommy balik je rumah terus bersilat kat dapur n buat kerja rumah yang lain. adik2 pun nak perhatian mommy jugak. i'll try my best ye darling. hopefully bulan june nnt, bila mommy punya task kat umah dah berkurang, kita will spend more time doing interesting stuff for your self development. u really taught me perseverance, patient and love....I love u sayang...


irfan iskandar

mamat yg memang banyak mulut. pagi2 bangun kalau tak mengamuk nak mandi kalau tak buat drama tak sah! sabor je lah mommy n abah. tak nak baju tu le, tak nak spender yang ni, tak nak gosok gigi, etc...penat melayan drama prince sorang ni...bila mommy ajak buat homework, dia boleh cakap "tak nak buat home, irfan nak main.."
suka ikut abah pergi solat kat surau tapi tak solat pun, kacau org solat je....
makan mmg banyak, esp kalau mommy suap tapi badan tetap kenit
sekarang dah pandai tak nak ikut mommy n abah, nak ikut atuk le, nak naik aeroplane ngan ummi le...suka hati dia je...
pandai ajak adik main. selalunya ajak adik jadi partner-in-crime dia...pastu suka betul menyakat adik n abang amir. suka dengar org tu nangis2 n jerit2...geramnya kalau time tu mommy tgh buat kerja. mula le suara main kuat mcm tertelan mic....


aisyah amanda

ni pun banyak mulut gak. dah boleh form ayat from more than 3 words. example: "ammy, atit ale aicah" (read: mommy, sakit kepala aisyah)
kejap address herself as 'aisyah', sometimes 'adik'
kuat gak mengadu. kalau nangis, mommy tanya sape buat mesti dia bgtau
kalau amir atau irfan something yang dia tahu mommy akan marah, cepat je dia ngadu....haisyyy
rajin tolong mommy. kalau suruh dia buang sampah ke, masuk kain dalam bakul ke mmg cepat je
semoga adik akan ringan tulang tolong mommy sampai ke besar le hendaknya
sangat manja ngan mommy tapi kalau tanya adik ni anak sape? dia mesti jawab abah...
rambut makan kerinting. i heart her rambut sooo much...tapi kalau nak sikat mmg seksa le sikit
dah makin tembam n gemuk...kuat makan ni....

ok le, itu je update kanak2 riang saya.....

wassalam...

my autism note - #6

I wish most people will aware!!!